Your Relationship with Complex Service Systems

Are you a parent of a child (including adult children) affected by a genetic condition that requires high-level care in order to meet their basic daily needs?

The research team from the Faculty of Education and Social Work, University of Sydney, are interested in the relationships that parents have with the many services they are in contact with as a result of their caring role (for example health, education, disability, finance, employment). The study is open to parents located anywhere in Australia. Interpreters can be arranged if needed.

The study aims to contribute to the planning of service systems that are more effective for parents who are caring for children with high-level care needs.

If you are interested in further information or becoming involved in the study, please refer to the Information Statement link below:
Parent perspective complex service systems Information Statement (PDF 192KB)

Further enquiries please contact Pam Joseph on 0435 532 074 or email


This entry was posted on June 23, 2015